The work of managing multiple myeloma and its implications for treatment-related decision making: a qualitative study of patient and caregiver experiences
By Cheryl Pritlove, Mobin Jassi, Bridget Burns & Arleigh McCurdy
The evolving nature of multiple myeloma (MM) therapies, including the introduction of novel oral agents, has produced a shift in the delivery of care from hospital to home. Within this context, patients and their caregivers are becoming increasingly engaged in the work of illness management, however the exact nature of this work as well as the ways in which this work informs treatment preferences and decisions within this population has not been explored. This qualitative study sought to develop an in-depth understanding of patient and caregiver experiences with different MM treatments, the work necessitated by MM and treatment management, and the processes of patient/caregiver treatment-related decision making.
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