As a myeloma patient, you may be able to make an invaluable contribution to myeloma research and the development of new therapies. Perhaps you can donate marrow for laboratory research, or can volunteer for a clinical trial. Speak with your doctor or your healthcare team.
There are both advantages and disadvantages to participating in clinical trials.
The advantages are:
Among the disadvantages to consider:
It is important that you understand all potential risks and benefits before you agree to join a clinical trial. People who are asked to participate in a clinical trial must give what is called an informed consent. To do so, the clinical trial coordinator must give you a written document that explains in plain language the study protocol or written plan, as well as all potential risks, benefits and requirements.
If you are considering a clinical trial, don’t be afraid to ask a lot of questions. The more you know about a study, the more informed your decision will be. Some questions you may want to ask include:
Myeloma Canada is affiliated with the International Myeloma Foundation, the world's oldest and largest myeloma organization
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